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3 things I learned from my intellectually disabled son

Emilie Weight at TED@Merck KGaA, Darmstadt, Germany.

Emilie Weight, maman française de deux enfants dont un garçon atteint du syndrome de l'X Fragile, était invitée à participer en novembre dernier à une conférence TED à Londres. Elle a choisi de parler de son fils et plus généralement des personnes avec retard intellectuel. Voici son discours, en anglais.

As a mother with a son affected with Fragile X syndrome -- a genetic disorder -- Emilie Weight believes that a diagnosis of disability can create opportunity, not despair. Her son's differences compelled her to question her inner self and her role in the world. With this new mindset she discovered his true superhero qualities when she stopped treating him like a patient and started treating him like a partner, leading her to three essential tools for how to approach life.

Voir la vidéo sur TED (November 2017)

Emilie Weight · Patient advocate
Emilie Weight has a passion for transforming issues into opportunities. As a Change Program Office Manager and Future Patient Advocate at Merck KGaA, Darmstadt, Germany, she connects the dots of her personal and professional ambitions by focusing on the positive outcomes and strengths of all situations. She focuses on change management as well as the #asone4patient change agent initiative and recently started a new role as Patient Advocate in France.